Background: The medical complexity of neurogenic bladder underscores the importance of proper patient and caregiver education surrounding this condition; however, there is a paucity of high-quality patient education materials on the topic. We developed an educational video to address this gap and enhance caregiver understanding of neurogenic bladder. This study aims to assess the effectiveness of the educational video in improving knowledge about neurogenic bladder among caregivers of children with neurogenic bladder. Methods: We identified all English-speaking caregivers of patients aged 0 to 18 years diagnosed with neurogenic bladder, without a history of major reconstructive surgery to treat neurogenic bladder, and who received care at our institution from January 2018 to December 2022. Enrolled caregivers were randomly assigned to either the control or video group based on their child’s age (0 to 4 years old, 5 to 11 years old, and over 12 years old). Participants in the control arm completed a 6-item knowledge assessment before viewing the educational video, while those in the video group watched the video prior to completing the assessment. All participants rated the video's acceptability. Associations between categorical variables were assessed using chi-square tests, and Wilcoxon rank sum tests for categorical by continuous variables. Relative probability of a correct response was estimated using binary regression with generalized estimating equations, assuming an unstructured correlation, to correct for multiple responses. All analyses were conducted using SAS v 9.4 (Cary, NC).Results: Of 409 eligible participants, 106 (25.9%) completed the study. Table 1 presents demographic and clinical characteristics of the video (n=48) and control (n=58) groups, with little to no statistical evidence for differences between the groups. For the knowledge questionnaire, 64.6% of participants in the video group answered all questions correctly, compared to 31% of those in the control group (Table 2). After adjusting for patient age, there was strong evidence that caregivers in the video group were more likely to answer any question in the knowledge assessment correctly (Relative probability: 1.13 95% CI [1.06, 1.21], p < 0.001). Notably, the most significant differences in correct answers by group were observed in questions 1 (95.8% vs 79.3%, p= 0.012), and 6 (87.5% vs 67.2%, p= 0.014). Conclusions: The literature shows the benefit of using technology and visual aids to enhance health literacy for patients and caregivers. Improving patient/caregiver health literacy is a first step towards optimizing health outcomes for pediatric urologic patients. Our study found that an educational video about neurogenic bladder effectively enhanced parental understanding of the condition. Future directions include a) translating the video into other languages to assess the impact of the educational video on a more linguistically diverse group of parents/caregivers and b) assessing the video’s effectiveness in enhancing understanding among pediatric patients.
